Recently I went to the dentist and learned something about cerebral palsy that never occurred to me. The dental hygienist commented that if she gives me short breaks during the cleaning it goes by faster and she is actually able to do a better job. Continue reading
Imagine you can’t speak or if you do have a few word communication is a slow and frustrating process of people abruptly ending talking to you or perhaps not engaging in conversation at all. Continue reading
In case you haven’t heard there was an embarrassing scene at one of Kanye West’s recent concerts. The crowd of concert goers was demanded to stand up in order for the concert to proceed. That is when the artist noted a few people not obliging his request and drew unnecessary attention to these poor folk who like everyone else were simply trying to enjoy the concert. He stopped the concert and demanded they stand up, with little regard for why they may not be. One of the singled out spectators was reported to have waved a prosthetic leg the other was confirmed by a bodyguard to be in a wheelchair. Continue reading
Although I am not a parent I feel I have a unique perspective on the world of special needs children being that I have cerebral palsy myself.
Simply put treat your child as you would treat any other child, allow them to show you what they are capable of. I know for myself it is far easier to ask for help from others for things that I am perfectly capable of doing for myself. They will truly amaze you!
I think it is interesting to see how people relate and make sense of things they don’t understand. I grew up with the knowledge of my cerebral palsy. Continue reading
I don’t know if I am weird, but I truly hate clothes shopping things I like don’t always work because my range of motion makes putting on clothes a challenge. The same is true with me and shoes because thanks to cerebral palsy I cannot point my toe if my life depended on it. This makes shopping for clothing more of a chore than it is enjoyable. Continue reading
How do you spend the last days of summer? For some it may be long nights at the side of a campfire for others it may be spending time at the at the beach or with family. No matter the way you choose to spend your time I think it is true that for a lot of folks’ summer is their favorite time of year. Continue reading
When I think of myself, I don’t think of my disability first and foremost. Sure, I’ve used an array of mobility equipment over the years, but I only see the mobility devices as a means of transportation. However, there seems to be much social stigma about disability in young people. I wish that people would see my wheelchair much like I do, simply as my way to get around. But, there seems to be this notion that I have a cognitive impairment to go along with my physical limitations. As much is in some cases this could be true, in many it is not, and I feel that this is a barrier to meaningful social interactions for people with disabilities. Continue reading
While looking for something to blog about today I found a question that I had neglected the answer from a while ago. The question was simply how do I become a personal support worker. This role is known by a few different terms, depending on where you live. I have seen: personal support worker, personal care attendant, or carer. I will refer to it as personal care attendant or attendant simply because that is what I use in everyday language so I will use that through out this blog post. Continue reading
this is my cerebral palsy daily playlist with the ice bucket challenge video included watch and enjoy be sure to subscribe on youtube so you dont miss any of my videos as they aren’t always posted on this site