When I think of myself, I don’t think of my disability first and foremost. Sure, I’ve used an array of mobility equipment over the years, but I only see the mobility devices as a means of transportation. However, there seems to be much social stigma about disability in young people. I wish that people would see my wheelchair much like I do, simply as my way to get around. But, there seems to be this notion that I have a cognitive impairment to go along with my physical limitations. As much is in some cases this could be true, in many it is not, and I feel that this is a barrier to meaningful social interactions for people with disabilities. Continue reading
While looking for something to blog about today I found a question that I had neglected the answer from a while ago. The question was simply how do I become a personal support worker. This role is known by a few different terms, depending on where you live. I have seen: personal support worker, personal care attendant, or carer. I will refer to it as personal care attendant or attendant simply because that is what I use in everyday language so I will use that through out this blog post. Continue reading
this is my cerebral palsy daily playlist with the ice bucket challenge video included watch and enjoy be sure to subscribe on youtube so you dont miss any of my videos as they aren’t always posted on this site
I am in process of planning upcoming content and would like to know what would be helpful
Last week I was approached by a start up company that truly caught my attention. They are developing a product that in my opinion could change communication for people with speech difficulties.
The co-founders realized a need of making communication easier and the concept was born. I think its best if I show you a demonstration
The most asked question I get from my readers is: how to help a child with cerebral palsy? This question is admittedly frustrating to me because I want to respond with something like help with them with what? So my answer to this question is this: Continue reading
I have been thinking a lot about self doubt and confidence issues as it relates to one’s perception of self. I have written a lot about how tasks in life when you have cerebral palsy take far longer than for the average person and I think it is interesting to reflect on how that can impact on your sense of self confidence when you have a physical disability.
Because it takes so much time to complete tasks, it was somewhat common place to have people do things for you, things that you yourself are very capable of doing, but because time is in limited supply and it is simply faster to have assistance that is often the easiest answer.
My question then becomes does having help all the time lead to feelings of self doubt and a lack of confidence in yourself? Especially since moving out, I feel I have learned to strike a healthy balance of having help, in the form of personal care attendants while at the same time feeling and finding a sense of independence within myself.
I feel more independent now with attendants than I did without them. They help me with things that probably with a little ingenuity on my part I could figure out how to accomplish on my own, but the point is cerebral palsy takes a lot more energy to do simple things (even sitting) because my muscles are tighter than the norm. Having attendants works well for me because it allows me to save some of my energy daily to do things I actually enjoy doing.
A question I had overlooked in the creation of this blog, is this: how do you get cerebral palsy? Continue reading
Although I can only write to my own experiences I have a lot to say, especially on the subject of social isolation. I think that they’re a lot of misconception regarding social isolation and disability. I think there are a few reasons why social isolation occurs in children with physical disabilities. For the sake of this post I am going to speak about childhood and physical disabilities as it is what I have the most first hand experience with. Continue reading