Brain and body: the disconnect between perception of self and disability

I, when watching brooke elison realized

 how one, an accident victim probably perceives themselves as able bodied in dreams. It got me thinking, I have been disabled err differently-abled my whole life Cerebral Palsy is not like a light switch in that regard, but at the same I do think of it as a light switch and heres why: you know when you turn on a light and it flickers? That’s what I believe happens in my brain. When I try to send a message to my lower body (well any limb actually but it’s most noted in my legs) the light flickers if you will and then my brain understand and follows through with said action.

Kids used to ask if I missed walking, how can I miss something I have never known. Or they would ask how I hurt myself etc etc etc which is in part why I write this blog I am a voice for those who can’t. what are your thoughts? part two of this found here

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About lifeofthedifferentlyabled

Laura Forde founded her blog through my eyes: my life with cerebral palsy in December 2009 out of a great need she had, realizing that there was a vast gap in firsthand accounts of what life was like living with Cerebral Palsy: she knew then that the only way to see this reflected online was to create the change herself and thus this blog was born Laura was born four months premature, weighing a mere one pound three ounces and given ten percent odds for survival. She was diagnosed with cerebral palsy at the age of three. After graduating from college, she continued writing and doing what she loves to do most; speaking to groups about her life experiences and sharing what she has learned from her journey. Her blog lifeofthedifferentlyabled was created after discovering that the online community lacked the voice of people in her situation. In its first year, the site saw over 20,000 hits from all over the world. Her readers are from all walks of life; some with disabilities, parents of children, professionals, and others who seek to gain a better understanding of the world of the differently abled. You can follow her on Twitter or Facebook
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0 Responses to Brain and body: the disconnect between perception of self and disability

  1. The light flickering is a great analogy! Thanks for sharing that. If you don’t mind, and this may sound kind of dumb, but what does CP make your muscles feel like? I imagine it’s different for every person, but I’ve always wondered – do the tight muscles hurt? Do you have weird sensations in your legs, or is it something you don’t really notice? I asked Monkey out of curiosity awhile ago what his left arm feels like (left arm and hand are more affected than his leg/foot), and he described it as sometimes feeling heavy and like it’s in slow motion. I hope this question doesn’t offend you – again, I’m just trying to understand it more as someone who has never been through it. Thanks!

  2. Thanks so much – looking forward to it!

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