I, when watching brooke elison realized how one, an accident victim probably perceives themselves as able bodied in dreams. It got me thinking, I have been disabled err differently-abled my whole life Cerebral Palsy is not like a light switch in that regard, but at the same I do think of it as a light switch and heres why: you know when you turn on a light and it flickers? That’s what I believe happens in my brain. When I try to send a message to my lower body (well any limb actually but it’s most noted in my legs) the light flickers if you will and then my brain understand and follows through with said action.
Kids used to ask if I missed walking, how can I miss something I have never known. Or they would ask how I hurt myself etc etc etc which is in part why I write this blog I am a voice for those who can’t. what are your thoughts? part two of this found here
The light flickering is a great analogy! Thanks for sharing that. If you don’t mind, and this may sound kind of dumb, but what does CP make your muscles feel like? I imagine it’s different for every person, but I’ve always wondered – do the tight muscles hurt? Do you have weird sensations in your legs, or is it something you don’t really notice? I asked Monkey out of curiosity awhile ago what his left arm feels like (left arm and hand are more affected than his leg/foot), and he described it as sometimes feeling heavy and like it’s in slow motion. I hope this question doesn’t offend you – again, I’m just trying to understand it more as someone who has never been through it. Thanks!
Ill answer this in a full post tomorrow
Thanks so much – looking forward to it!