How Does Cerebral Palsy Affect My Daily Life?

I would like to start this post off by reminding you, this post is about me, and that the opinions and experiences of others, might be very much different from my own.

The Obvious Physical Things

This post could not have come at a better time for me. I am thinking differently now, then I would when the weather is warm. I am a manual wheelchair user, and bulky winter coats just add to the time and energy it takes me to get out the door. It is not just about clothing, but winter makes my life harder. You may wonder how? The thing that probably comes to my mind first is snow! Snow, like sand is a chair user’s nightmare. The front smaller wheels on most chairs, mine included often dig into snow.

Growing up, because of the time it took me to get out on the playground for recess I would stay indoors. At least, if my memory serves me correctly this was part if not the full reason why I stayed inside. Recess was only 15 minutes long, and by the time I got already, in the winter, it would be time to come back in. another added benefit of my staying indoors in winter was that my muscles often don’t handle the cold well.

The Social Side of Disability

People mean well, but they don’t always understand what you are asking, when it relates to disability. Disability can socially separate.  Although in recent years efforts towards inclusion are happening, there is still room for change, in my opinion.

I remember once when my family had travelled out-of-town for a wedding, we were looking for a place to eat. The hotel had a book of local establishments. We called before to one that looked interesting and asked if they were wheelchair accessible. We were told yes. After getting lost for a few hours, we did find the restaurant. I have come to believe that some will answer the ease of access question with a yes meaning we welcome everyone and not take into account what is actually being asked. The only way in to the building is by a few flights of stairs.

I don’t get invited out much. I write about this in more detail here although that too has improved since I moved my friends come hang out at my apartment a lot. I would like to share a beautiful example of social inclusion now. I found this yesterday on this blog.

Share your thoughts, comments and feedback below

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About lifeofthedifferentlyabled

Laura Forde founded her blog through my eyes: my life with cerebral palsy in December 2009 out of a great need she had, realizing that there was a vast gap in firsthand accounts of what life was like living with Cerebral Palsy: she knew then that the only way to see this reflected online was to create the change herself and thus this blog was born Laura was born four months premature, weighing a mere one pound three ounces and given ten percent odds for survival. She was diagnosed with cerebral palsy at the age of three. After graduating from college, she continued writing and doing what she loves to do most; speaking to groups about her life experiences and sharing what she has learned from her journey. Her blog lifeofthedifferentlyabled was created after discovering that the online community lacked the voice of people in her situation. In its first year, the site saw over 20,000 hits from all over the world. Her readers are from all walks of life; some with disabilities, parents of children, professionals, and others who seek to gain a better understanding of the world of the differently abled. You can follow her on Twitter or Facebook
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2 Responses to How Does Cerebral Palsy Affect My Daily Life?

  1. casey says:

    hi my name is casey. you replyed to my question on yahoo so i went to your blog. i have severe athetoid cerebral palsey and dystonea. dystonea make me spasm a lot. i wants to say your very inspireing to me. im curently learn how to talk so pleaese look past my mistakes. again i wanted to say thank you for making this blog. it woud be so cool if you repliyed. thank you for reading

    PS. im sorry for my speech and spelling im really am working on it.

    • lifeofthedifferentlyabled says:

      Hi Casey I am glad you enjoy my blog and I try to reply to every single comment that I get! sometimes it takes me a few days but I will reply
      how are you? keep working on your speech and spelling

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