I am not a parent, but I am the child with the disability. My own experience I would guess rings true for many families who have a child with a disability: you know, where you are on-call for your child 24 hours a day seven days a week 365 days a year, that’s more than anyone’s livelihood and often times there’s no sign of this scheduling allowing a break.
The breakthrough for me
The first breakthrough came for me when I went to a sports camp for kids it was a weekend thing for kids with physical disabilities and for several years was the only break I had from my parents and they from me. When I was about 13 my mom convinced me to go to a second camp with my friend for 2 weeks. I loved it; I only regret now not going to that overnight camp earlier in life.
Respite is important for parents but it’s equally important for the child to have a break from their parents too
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