Being a teenage girl with cerebral palsy made life interesting. Most teenage girls live life out working or partying depending on personality. Life with spastic quadriplegia: the type of cerebral palsy that I have, made my social life different from my peers. Spastic quadriplegia simply means that the cerebral palsy I have impacts all of my limbs. There are different types of cerebral palsy and spastic quadriplegia is clearly the one I am most comfortable writing about.
A recipe for improving ones social life with cerebral palsy
One of the major impacts for me with spastic quadriplegia cerebral palsy is that my balance sucks. The social aspects of life spastic quadriplegia cerebral palsy made for a different social life. I don’t have the recipe that will create a sense of social inclusion. I know I have been writing a lot on the topic of social inclusion lately but it is my hope that by writing about it I can personally do something small in creating that recipe of change for the generations that will follow me. I would say that the social aspects of cerebral palsy have been the hardest for me while growing up with cerebral palsy. I wish there was a way to put teens in my shoes so they could get a true sense of the difference for me and my peers with cerebral palsy. That being said I am in no way looking for a pity party – and I think those mock simulation days where you put a student in a chair are good but at the end of it they can get up and walk away from it never paying another thought to it, So what elements go into the recipe for change? I feel perhaps the first one is education. But how do you educate someone on social inclusion? How do you teach social inclusion? Is it something that can be taught and if so how?
Another thing I feel that is important to remember to realize you or your child’s abilities. Spastic quadriplegia cerebral palsy makes my range motion limited. The next part of my recipe may come across blunt but I am guilty of doing this and I feel badly at times for it. That is, asking others to do stuff for me that I can do for myself. Spastic quadriplegia doesn’t make me any different than anyone else it just can make things a bit harder on a social front.
I hope you enjoyed this article – whether you agree with everything or not, send me your comments. opinions, suggestions and experiences – your input is very welcomed and much appreciated!