Don’t Forget Your Times of Respite

Sunset at Porto Covo, west coast of Portugal

Sunset at Porto Covo, west coast of Portugal (Photo Credit: Image by Alvesgaspar Via Wikipedia)

I am already in summer mode and I know I’ve written about this topic before but it is something that as “a special needs child” myself I feel it important to remind everyone! It wasn’t until I was in my early teens that I remember spending more than a night away from my parents! This was in part due to the fact that I was fearful to go to an overnight camp and because my extended family lives a great distance away; after much persuading my mother convinced me that my friend and I would have a blast at camp. She was right, we did have a blast!

It was an opportunity for me to learn independence separate from my family. It gave me a chance to realize what I truly can do and whatI actually needed help with. I learned and experienced many unique things that I otherwise would not have been able to camp related and otherwise in an environment that was geared to people with physical disabilities.
I urge you to remember that it is okay to take time out for yourself. Being a parent is difficult at best. Being a parent of someone with a disability is harder still. I know that many of you will find yourself feeling guilty but don’t, you’re allowed a break now and then and if you make what your child is going to do during the break for them this will be a time they too will come to look forward to. I know I did.

I hope you enjoyed this article – whether you agree with everything or not, send me your comments. opinions, suggestions and experiences – your input is very welcomed and much appreciated!

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About lifeofthedifferentlyabled

Laura Forde founded her blog through my eyes: my life with cerebral palsy in December 2009 out of a great need she had, realizing that there was a vast gap in firsthand accounts of what life was like living with Cerebral Palsy: she knew then that the only way to see this reflected online was to create the change herself and thus this blog was born Laura was born four months premature, weighing a mere one pound three ounces and given ten percent odds for survival. She was diagnosed with cerebral palsy at the age of three. After graduating from college, she continued writing and doing what she loves to do most; speaking to groups about her life experiences and sharing what she has learned from her journey. Her blog lifeofthedifferentlyabled was created after discovering that the online community lacked the voice of people in her situation. In its first year, the site saw over 20,000 hits from all over the world. Her readers are from all walks of life; some with disabilities, parents of children, professionals, and others who seek to gain a better understanding of the world of the differently abled. You can follow her on Twitter or Facebook
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2 Responses to Don’t Forget Your Times of Respite

  1. Mary Benson says:

    Laura I totally agree with you, as a parent of a boy with CP, the respite care is just as important to my son as it is me. He gets a chance to be with his peers and gains a little independence and has a great time for himself. I get to recharge my batteries! His weekends away (about every six weeks) have been part of our schedule since he was very young, and he so looks forward to his time with his friends!

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