In a perfect world I would still most likely be labeled as disabled: but I can’t lie, there are some things I wish were vastly different. the tight muscles make the every day task some days harder than others. The number of medical and therapy appointments i have had in my young life is beyond my ability to count. I am not going to lie there are some social perks like when you go to theme parks, or because of the wheelchair transit system not having to wait for a bus in the sno
I have been asked recently what cerebral palsy feels like and although I have answered that already I would like to add to my response here. I don’t know if I would trade the tight muscles the awkward movements and everything else that comes in part with spastic cerebral palsy. I can only dream of what a “normal” able-bodied life is and I am not sure given the chance to trade what I have, for what I could have, even given the chance would be something that I would do. You see how do you know what you are missing, if you have never missed it? Children will occasionally stop me to ask if I miss walking and I tell them that I have never walked so I don’t know what that’s like so I don’t miss it. All this taken into account I live a full and active life. I have been to Disney world, the theme park in Florida for a total of seven hours. Yes, I went for a day trip on plane to Florida, to go to a theme park. That sounds crazy doesn’t it?
I hope you enjoyed this article – whether you agree with everything or not, send me your comments. opinions, suggestions and experiences – your input is very welcomed and much appreciated!
Found it very instructive ,impelling to read what it is like to be born with cerebral palsy. OTOH I realize this is writing of an individual. Of course like everybody else everyone with what ever condition is of course an individual.
One of my dearest girl friends in high school was someone with cerebral palsy. I know from being an assistant physical therapist at a “home for crippled children” that there are at least four different types of CP. Spastic being only one of them.
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Mugwort thanks for your comment what is OTOH?
Hi Laura
I know that my son who has vision difficulties doesn’t see the limitations he has since his eyes have always been the way they are. He has learned many ways to compensate in 7 short years and we’re learning how to help him as he grows up.
There are many things that he is not able to do, but there are so many other things that he can do and he does them well.
Your attitude is inspiring and will serve you well as you go through this life. You’re definitely a “glass half full” kinda gal! Keep up the great writing!
By the way, OTOH in the previous comment means “on the other hand.”
Bill (LoneWolf) Nickerson recently posted..Sleep Apnea with Dr. Sweet [Humourous]
Hi Bill thank you for your comments I hope you will keep coming back glad your son doesn’t see his challenge as a source of frusteration! How did you come a across my blog I hope you will continue to read and comment
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