Recently, I have had a lot of questions about cerebral palsy and if it causes pain. I find this a difficult question to answer because cerebral palsy impacts every person differently. This post by its nature than can only speak to my own experiences and the impacts of this subject in my life. I want to start by saying: I want people to understand that there are things about cerebral palsy that can cause pain but it isn’t what I would consider a painful condition.
I have written about the most painful part of my cerebral palsy and that I would have to say is the two orthopedic surgeries I have had in my life time the first when I was probably around four and this was a surgery to lengthen my tendons and quite literally make it easier for me to sit. As the young child that I was I was unprepared, (even though people had tried to prepare me) for the post-operative pain. As from that same surgery and being as young as I was I had no concept of the fact that a cast would leave me immobile and that scared me. My hip surgery when I was 11 was a huge source of pain before the actual surgery.
Sure, those are obvious sources of pain a byproduct of my cerebral palsy. But I want to write more about day to day sources of pain. I deal with tight muscles regularly and this can cause some pain. This is mainly an issue for me in the winter because if I don’t maintain warmth internally I end up with tight muscles. I wear the warmest clothes I can find in the winter and limit the length of time I am out doors in winter also.
Does cerebral palsy cause you pain?
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