does having cerebral palsy hurt

Often I get asked if cerebral palsy hurts. There are honestly two sides to this coin, and in this post I am going to do my best to answer both sides of the question as it relates to my own life.

Moments when it hurts

I think it’s different for every person, so I can only speak for myself here but I have noticed that weather impacts me greatly especially when it is winter and cold outside. Recently since my kidney failure I have wondered if my muscles hurt when my body is retaining fluid, this however is only my personal thoughts and not based in fact of any sort.

Sometimes

I get asked all the time if having cerebral palsy hurt; the answer is sometimes. It depends on how your cerebral palsy impacts you. Let me further explain, spasticity is honestly a pain no pun intended.

When it does not hurt

Again, this is only speaking to me and my experience with cerebral palsy. The main time I am aware of the spasticity is weather related in heat I feel great, I really should live in California or Florida or somewhere warm because I have very little if any discomfort from my cerebral palsy.

Although the solutions I am about to suggest have worked for me that does not mean that it will work for you so it’s a matter of trial and error here

A few ideas that have ended up working for me

  • heat as in say sleeping with a hot water bottle in your bed can help your muscles relax
  • this one seems odd to me but I have noted over the years that swimming actually helps relax my muscles making me more comfortable in the end

So I think it’s safe to say that sure there are physically uncomfortable but for the most part it’s not that annoying but I am curious if you feel the same about heat and swimming or if you have other suggestions, let’s talk about it in the comments below

 

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About lifeofthedifferentlyabled

Laura Forde founded her blog through my eyes: my life with cerebral palsy in December 2009 out of a great need she had, realizing that there was a vast gap in firsthand accounts of what life was like living with Cerebral Palsy: she knew then that the only way to see this reflected online was to create the change herself and thus this blog was born Laura was born four months premature, weighing a mere one pound three ounces and given ten percent odds for survival. She was diagnosed with cerebral palsy at the age of three. After graduating from college, she continued writing and doing what she loves to do most; speaking to groups about her life experiences and sharing what she has learned from her journey. Her blog lifeofthedifferentlyabled was created after discovering that the online community lacked the voice of people in her situation. In its first year, the site saw over 20,000 hits from all over the world. Her readers are from all walks of life; some with disabilities, parents of children, professionals, and others who seek to gain a better understanding of the world of the differently abled. You can follow her on Twitter or Facebook
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4 Responses to does having cerebral palsy hurt

  1. I agree with what you said about everybody’s different. So asking someone if cp hurts doesn’t answer for everyone. As for me I always had a high tolerance for pain, I don’t know if that’s cp related. Having said that, I do experience pain or discomfort as I call it. The last time I felt pain was a sharp pain when my rib broke almost two years ago however, I think anyone would feel a rib break. I, on the other hand only felt the pain of it break, after that I felt no pain. I’ve broken other bones that I have not felt yet when the limb turns purple, I have to go to the doctors to see what happened. Walking is the only indication that I have cp and it is not painful. If I fall and injure myself, I sometimes don’t know I skinned my knee until I get home or it bleeds so much I can see it through the pants. So, I can answer the question “does cp hurt” yet I will only be answering it for me and my experience. If one wants to know if cp hurts, ask because everyone is different.

  2. Crip Video says:

    CP is not painful for me and my docs have told me this is because I move my body a lot which naturally reduces spasticity. Sometimes I have knee issues but that is from my surgery not CP directly.

  3. Katherine says:

    Spasticity is an issue for me. I agree cold weather makes pain worse. Hot water bottles help. I have very bad circulation

  4. Liz says:

    Thank you for posting this. My sister had severe cp and was unable to talk for her entire life. She died at 29. She was born only a little over a year after me so I never knew life without her. I always wanted to know everything that she felt, everything she was thinking…and the pain that I saw her in affected me deeply. I wished I could take her pain and give it to myself. I would have done this willingly and happily. Even to this day I know that I was always so much weaker than her in almost every way. She gave me all of the strength and love I have had in my life. She, although disabled and unable to walk or talk, saved me. And although she is now gone, continues to save me. I appreciate your comments and expression, more than I can express. It brings me comfort and healing and understanding.

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