When I think about my life and the impact of having cerebral palsy I have been asked if I could take a magic pill or something and be cured of my cerebral palsy and honestly the answer was if I could be cured I wouldn’t be happy,
Ellen from love that max said something that struck me:
Cerebral palsy can be different every day.
When Max is cold, his muscle tend to be more stiff, exactly why he should be regularly vacationing in tropical islands. When he’s excited or nervous, his muscles also tense up. I used to wonder whether it hurt him until he was finally able to express to me whether or not something pains him and so far, so good, although muscle aches can be an issue for kids and adults with CP.
sure it can be frustrating and sometimes annoying to deal with the tight muscle but remember Max and I and everyone else with cerebral palsy don’t know any other way of life. I don;t find myself longing for things I have no frame of reference for like in my case walking independently without some form of support. although i am not going to lie vacation on a tropical island right about now sounds nice.growing up in Canada I live a snow filled climate to the point that the world’s stereotype is that Canadians live in igloos. Sure we don’t live in igloos but the cold climate does make it fun in the winter to put it mildly.
But I feel like I have met some like mind people with cerebral palsy because of the shared experiences of living with it. It is amazing to me how much shared experiences like disability can bring a bunch of people together.
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