Spasticity; my love hate relationship with it

Spasticity is a common thing for people with cerebral palsy, everyone with cerebral palsy is impacted differently, even if the diagnosis is the same. It is described as tight muscles which would make sense, because the vast majority of us are stuck living with tight muscles.

I think it’s a problem for us who live with cp because there is no known solution just management tools. Basically, there’s not much a person with cerebral palsy can do but live with it. The only solution I can think of is to talk to your doctor and seek some form of medication. For me I find this a source of frustration in my life.

I use my spasticity to help me stand, I didn’t realize this consciously until I got sick and was building up my strength, my legs felt like spaghetti for literally weeks and I was convinced they had me on some medication that was some form of muscle relaxant that was causing my muscles to be so weak. It wasn’t I was just that weak and my spasticity did come back and I am getting back to where I was physically I got sick.

I honestly wish I had an answer for everyone, myself included. But I want to know in the comments below how do you deal with tight muscles in your own life. Do you take any meds for it? I don’t and never have. If you have solutions that you think will help others please share and lets help others in the comments below.

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About lifeofthedifferentlyabled

Laura Forde founded her blog through my eyes: my life with cerebral palsy in December 2009 out of a great need she had, realizing that there was a vast gap in firsthand accounts of what life was like living with Cerebral Palsy: she knew then that the only way to see this reflected online was to create the change herself and thus this blog was born Laura was born four months premature, weighing a mere one pound three ounces and given ten percent odds for survival. She was diagnosed with cerebral palsy at the age of three. After graduating from college, she continued writing and doing what she loves to do most; speaking to groups about her life experiences and sharing what she has learned from her journey. Her blog lifeofthedifferentlyabled was created after discovering that the online community lacked the voice of people in her situation. In its first year, the site saw over 20,000 hits from all over the world. Her readers are from all walks of life; some with disabilities, parents of children, professionals, and others who seek to gain a better understanding of the world of the differently abled. You can follow her on Twitter or Facebook
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6 Responses to Spasticity; my love hate relationship with it

  1. I think it’s a brain muscle communication solution. For me, when I drink alcohol it loosens up my muscles however, because alcohol affects my brain, the communication loosens, relaxes or isn’t always telling my muscles to be tight. I don’t know specifics because I am not a scientist. However, because of the risk of co-dependency with alcohol, I rarely drink and when I do, I don’t drink a lot. I don’t know, this all might be bs, a coincidence or what-not.

    • Katherine Hayward says:

      Robert, I rarely drink either. Maybe it is just coincidence as a lot of people witout CP notice that. I have friends without CP and they notice that. Go to your family dr if you need advice. I am not sure exactly if it is coincidence as I have all but given up alcohol.

    • Crip Video says:

      Yes it is confused communication. I think spasticity is the electric signal getting sent too often and drinking prevents the signal getting through hence the relaxation but the spasticity will be worse after the relaxation of being intoxicated has worn off and alcohol can cause further damage to the brain. Therefore I do not drink.

  2. Katherine Hayward says:

    I take baclofen tablets and feel they immediately help with pain from spasticity. It is still bad despite me taking them 3 times daily. I am considering the pump. I have a shunt for hydrocephalus so need to check out if I will be better with my spasticity situation or not. On bad days I also take tramadol

  3. Terry M. Sharp says:

    EXERCISE!!!!!!! And keep it up all your life. Get hand weights or anything. Work those arms and legs daily. I use stretch bands.

    Ride an bike. Just move, move, move!!!!!!!!!

  4. Crip Video says:

    We do indeed use spasticity for strength but that weakness that changes back to spasticity is likely from the stroke…my friend/teacher who had a stroke was extremely weak and then ended up with tension similar to my own spasticity as his strength returned, your brain is using spasticity to compensate for both the CP and the stroke.

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