april fools

happy april fools yall

if you like my content why not help me out by joining my mailing list its free Click Here to Subscribe you will receive a email from me and a free gift just for signing up! and every time i post an new blog post you will get an email for that too.

There was an issue loading your timed LeadBox™. Please check plugin settings.
There was an issue loading your exit LeadBox™. Please check plugin settings.

how to help children with communication disabilities break down barriers

I think as a person with a disability, we have an innate ability to learn to adapt.  I think we don’t even realize that we adopt in the process of living with a  complex disability such as carp. I think, though I can’t speak from personal experience, but I think it would be socially difficult to live in a world of silence or a world where you can’t freely communicate and have to rely on technology to be your voice on an ongoing basis. .

I think the one benefit of being a child using technology to communicate, compared to adult that has for one reason or another adopted this form of communication later in life is that this is all the child has known,ma they don’t grieve the lost of an ability that the adults in their life the way adults do because its all they have ever known.

It is through observation that I can tell you that children are fast moving when they play to me this is a barrier if you’re a child with a physical disability and have a barrier to communication because being unable to communicate isolates you, because honestly kids simply don’t understand what is different from themselves.

For anyone change and differences are scary. Adults desperately want the kids in their lives to feel included. But I have some harsh news for all you adults.

I am unaware of a solution, you can’t force kids to play together, even if you offer ideas of inclusive play. You can only suggest it doesn’t mean that the kids will want to play in a way that will include the kid with a disability.

if you like my content why not help me out by joining my mailing list its free Click Here to Subscribe you will receive a email from me and a free gift just for signing up! and every time i post an new blog post you will get an email for that too.

There was an issue loading your timed LeadBox™. Please check plugin settings.
There was an issue loading your exit LeadBox™. Please check plugin settings.

being creative helps you learn to adapt

I like to think I am a creative person, do you? I honestly never thought of myself as a creative person until i started the blog. I think before I began blogging I think of creative to mean in a visual sense like painting or other art forms. But since I have been blogging my thoughts on this has generally broadened. Continue reading

if you like my content why not help me out by joining my mailing list its free Click Here to Subscribe you will receive a email from me and a free gift just for signing up! and every time i post an new blog post you will get an email for that too.

There was an issue loading your timed LeadBox™. Please check plugin settings.
There was an issue loading your exit LeadBox™. Please check plugin settings.

happy easter

just wanted to say happy easter everyone

if you like my content why not help me out by joining my mailing list its free Click Here to Subscribe you will receive a email from me and a free gift just for signing up! and every time i post an new blog post you will get an email for that too.

There was an issue loading your timed LeadBox™. Please check plugin settings.
There was an issue loading your exit LeadBox™. Please check plugin settings.

technology helps with inclusion

I often think about what my life would have been like if I was born era. Because I was born a very small premature and my birth weight was nearly unheard of.
I survived and now I am grateful to be born in the era that I am because honestly without the medical technology I wouldn’t have made it. Now, I see the beauty of technology, in a different light.
If you look back in history about how society treated the disabled a common theme emerges one of isolation and exclusion and honestly a general lack of overall understanding. But in my time I am happy to say that that has for the most part changed for the better. Continue reading

if you like my content why not help me out by joining my mailing list its free Click Here to Subscribe you will receive a email from me and a free gift just for signing up! and every time i post an new blog post you will get an email for that too.

There was an issue loading your timed LeadBox™. Please check plugin settings.
There was an issue loading your exit LeadBox™. Please check plugin settings.

Spasticity; my love hate relationship with it

Spasticity is a common thing for people with cerebral palsy, everyone with cerebral palsy is impacted differently, even if the diagnosis is the same. It is described as tight muscles which would make sense, because the vast majority of us are stuck living with tight muscles.

I think it’s a problem for us who live with cp because there is no known solution just management tools. Basically, there’s not much a person with cerebral palsy can do but live with it. The only solution I can think of is to talk to your doctor and seek some form of medication. For me I find this a source of frustration in my life.

I use my spasticity to help me stand, I didn’t realize this consciously until I got sick and was building up my strength, my legs felt like spaghetti for literally weeks and I was convinced they had me on some medication that was some form of muscle relaxant that was causing my muscles to be so weak. It wasn’t I was just that weak and my spasticity did come back and I am getting back to where I was physically I got sick.

I honestly wish I had an answer for everyone, myself included. But I want to know in the comments below how do you deal with tight muscles in your own life. Do you take any meds for it? I don’t and never have. If you have solutions that you think will help others please share and lets help others in the comments below.

if you like my content why not help me out by joining my mailing list its free Click Here to Subscribe you will receive a email from me and a free gift just for signing up! and every time i post an new blog post you will get an email for that too.

There was an issue loading your timed LeadBox™. Please check plugin settings.
There was an issue loading your exit LeadBox™. Please check plugin settings.

how to sleep comfortably with cerebral palsy

I don’t know about you, but I struggle sleeping sometimes. Right now as I recover from abdominal surgery sleeping can be a struggle  Spasticity and cerebral palsy at its best is a challenge I don’t necessarily have any answers, but I realized recently while recovering from surgery how much poor sleep can impact the rest of my day I don’t know if you struggle with sleep issues, but I was very aware of the inability to sleep because of discomfort Continue reading

if you like my content why not help me out by joining my mailing list its free Click Here to Subscribe you will receive a email from me and a free gift just for signing up! and every time i post an new blog post you will get an email for that too.

There was an issue loading your timed LeadBox™. Please check plugin settings.
There was an issue loading your exit LeadBox™. Please check plugin settings.

The biggest misconceptions about cerebral palsy are…

There seems to be a strong sense of misconception around disability and how the world relates to people with disabilities, and I want to help raise awareness for what life is like living with a disability.

The interesting thing about being a prominent voice in the disability blogosphere is that everyone who has a disability experiences life a little differently as their symptoms  and lifestyle may be different and how they are personally impacted by it may be different also. Continue reading

if you like my content why not help me out by joining my mailing list its free Click Here to Subscribe you will receive a email from me and a free gift just for signing up! and every time i post an new blog post you will get an email for that too.

There was an issue loading your timed LeadBox™. Please check plugin settings.
There was an issue loading your exit LeadBox™. Please check plugin settings.

Here’s a simple computer trick to help you be a faster typer and more productive

I have been blogging for a while, and honestly, it can be time consuming, but it’s something I truly love. I am always inspired by your friendly comments and emails, it keeps me motivated knowing that I am helping others, so consider this my humble thanks.

One of the things as a blogger I have always struggled with,is writing compelling and satisfying content for all of you.  In terms of actually blogging in a physical sense my typing speed has always been an issue so to overcome the physical limitation that can help me bust down the hurdles that would have otherwise been created. I overcame any barriers by using technology to help me. One such software I use and have talked about a fair amount of times on the blog. But it has truly changed my ability to be productive when writing, Continue reading

if you like my content why not help me out by joining my mailing list its free Click Here to Subscribe you will receive a email from me and a free gift just for signing up! and every time i post an new blog post you will get an email for that too.

There was an issue loading your timed LeadBox™. Please check plugin settings.
There was an issue loading your exit LeadBox™. Please check plugin settings.

lets talk does this bother you?

Over the last little while I have been keenly aware of my disability probably because of all the kidney stuff Continue reading

if you like my content why not help me out by joining my mailing list its free Click Here to Subscribe you will receive a email from me and a free gift just for signing up! and every time i post an new blog post you will get an email for that too.

There was an issue loading your timed LeadBox™. Please check plugin settings.
There was an issue loading your exit LeadBox™. Please check plugin settings.