happy easter

just wanted to say happy easter everyone

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technology helps with inclusion

I often think about what my life would have been like if I was born era. Because I was born a very small premature and my birth weight was nearly unheard of.
I survived and now I am grateful to be born in the era that I am because honestly without the medical technology I wouldn’t have made it. Now, I see the beauty of technology, in a different light.
If you look back in history about how society treated the disabled a common theme emerges one of isolation and exclusion and honestly a general lack of overall understanding. But in my time I am happy to say that that has for the most part changed for the better. Continue reading

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Spasticity; my love hate relationship with it

Spasticity is a common thing for people with cerebral palsy, everyone with cerebral palsy is impacted differently, even if the diagnosis is the same. It is described as tight muscles which would make sense, because the vast majority of us are stuck living with tight muscles.

I think it’s a problem for us who live with cp because there is no known solution just management tools. Basically, there’s not much a person with cerebral palsy can do but live with it. The only solution I can think of is to talk to your doctor and seek some form of medication. For me I find this a source of frustration in my life.

I use my spasticity to help me stand, I didn’t realize this consciously until I got sick and was building up my strength, my legs felt like spaghetti for literally weeks and I was convinced they had me on some medication that was some form of muscle relaxant that was causing my muscles to be so weak. It wasn’t I was just that weak and my spasticity did come back and I am getting back to where I was physically I got sick.

I honestly wish I had an answer for everyone, myself included. But I want to know in the comments below how do you deal with tight muscles in your own life. Do you take any meds for it? I don’t and never have. If you have solutions that you think will help others please share and lets help others in the comments below.

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how to sleep comfortably with cerebral palsy

I don’t know about you, but I struggle sleeping sometimes. Right now as I recover from abdominal surgery sleeping can be a struggle  Spasticity and cerebral palsy at its best is a challenge I don’t necessarily have any answers, but I realized recently while recovering from surgery how much poor sleep can impact the rest of my day I don’t know if you struggle with sleep issues, but I was very aware of the inability to sleep because of discomfort Continue reading

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The biggest misconceptions about cerebral palsy are…

There seems to be a strong sense of misconception around disability and how the world relates to people with disabilities, and I want to help raise awareness for what life is like living with a disability.

The interesting thing about being a prominent voice in the disability blogosphere is that everyone who has a disability experiences life a little differently as their symptoms  and lifestyle may be different and how they are personally impacted by it may be different also. Continue reading

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Here’s a simple computer trick to help you be a faster typer and more productive

I have been blogging for a while, and honestly, it can be time consuming, but it’s something I truly love. I am always inspired by your friendly comments and emails, it keeps me motivated knowing that I am helping others, so consider this my humble thanks.

One of the things as a blogger I have always struggled with,is writing compelling and satisfying content for all of you.  In terms of actually blogging in a physical sense my typing speed has always been an issue so to overcome the physical limitation that can help me bust down the hurdles that would have otherwise been created. I overcame any barriers by using technology to help me. One such software I use and have talked about a fair amount of times on the blog. But it has truly changed my ability to be productive when writing, Continue reading

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lets talk does this bother you?

Over the last little while I have been keenly aware of my disability probably because of all the kidney stuff Continue reading

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special needs adult wants you to know

I grew up being different I guess what would call “special needs” and because that special need was visible in its nature it made for interesting social aspects in my life.The truth is children are hard on each other. Continue reading

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I welcome a child’s curiosity

I think all too often when you live life from the point of view, of a visible disability I think it truly lends itself to being somewhat of a poster child for other folks with disabilities. My perception is that able bodied people generalize people with disabilities Continue reading

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you asked how i blog

I’ve had a lot of questions recently, about how I blog. And at first I thought this was a strange question, but I do my best answer your readers questions as they come in. I’m not really sure what the reader is asking when they ask me how I blog. So I will do my best to make sense of the question. It sounds to me like your question really being asked here is how I stay consistent with my blogging efforts. I try to stay ahead of schedule because I get immense enjoyment out of simply writing to help others. Obviously, because life gets in the way your best plans don’t always work. But I tried to plan everything out on a schedule ahead of time. By planting at a time I don’t run into writer’s block because I have an idea of what I want to write. Sure, that idea doesn’t always turn into the finished written piece, but it’s at least a starting point , and because I’m not staring at a blank screen with a deadline looming it surprisingly helps , I at least have a starting point. I also tend to plan my blog posts and videos, plotting them on a calendar so that it helps me stay ahead of schedule and make sure that I haven’t posted one week to the next about the same topic. It helps me plan out ideas and brainstorm ahead of time.

Continue reading

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