synchronized swimming for special needs youth

When I was probably around nine I decided I wanted to join my local synchronized swimming program. At the time, I couldn’t stand up independently (and still can’t without some form of assistance) let alone swim, the one thing I had going for me was the fact that I really did enjoy the water and was not fearful of it in any way. Continue reading

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cerebral palsy in the classroom things to consider

I have made adaptations throughout my life and in school was no exception, when I was a kid, I had difficulty seeing the blackboard in the classroom, I don’t think this had anything to do with anything other than my glasses weren’t right at the time (that’s for another blog post sometime perhaps) but the point is I couldn’t see the blackboard which made learning to spell when I was young a challenge. Continue reading

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throwing a party with a disability

In July a friend of mine moved into her own apartment for the first time, I decided to throw her a party and invited some of her friends for a drop in, I held it the day before her birthday so it ended up being a housewarming/birthday party. The most difficult part was figuring out how to handle the logistics of food prep. Thankfully I was able to enlist the help of some of my staff. Continue reading

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what harry potter and disability have in common

Harry potter fans are all too familiar with the invisibility cloak and frankly, so am I, thanks to the visibility of my cerebral palsy I am left with the feelings of social invisibility that rears its ugly head when lack of time and understanding creates a social divide. The sad but very real reality is that that as visible as my wheelchair makes my disability it is also the gap that can separate me from meaningful social interaction with my peers.

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are support staff overly helpful at times?

Moving out on your own has its challenges for anyone, but a unique set of challenges arises when you have a physical disability and require assistance from others to accomplish activities of daily living. Figuring out what you actually need help with and what you are capable of accomplishing on your own as well as the niceties of having them there to help is something that everyone who has support staff has to figure out.

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disability in mainstream television

Today, while writing this I am watching television. And although there are representations of people with disabilities in mainstream television in reality TV I’m frustrated that none of these representations include in wheelchairs. I should note that yes Artie from Glee is the exception to the rule, but my argument with that Artie is played by an able-bodied actor. I don’t understand, why this is something of a challenge for the mainstream media, the years I’ve learned to realize that it is and frankly quite excited that disabled characters are included in shows and more excited still when those characters are played by disabled actors and actresses themselves.

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A tip for dealing with Spasticity

Spasticity is commonplace for me due to my cerebral palsy it means tight muscles and muscle spasms which at times means a rough night of sleep.

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