Preventing Social Isolation and Loneliness In Cerebral Palsy

In a lot of cases, disability can to no fault of its own become an extremely isolating experience. If you have been a long time reader you will realize that I have written on this topic a lot; today is no different and I write about it now because I hope to bring a new perspective to this subject.

A lot of my friends don’t like to acknowledge their cerebral palsy, I find it hard to ignore but that’s just me.I always surrounded myself with “disabled” activities. Activities that often turn into social outlets for me and others. Many of those people from such groups have remained in my life to this day.

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These Boots Are Made For walking

I wonder if any of you have heard of this interesting new concept called a Lokomat. it is a robotic piece of technology that allows people who currently have the inability to walk independently a chance to get back up on their feet. Continue reading

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the plight of tightness

I wish I could describe the frustrating feelings I am having lately. I feel like a caged bird restricted by tight hips. Today in preparing to get into my Kaye walker my friend who also has cerebral palsy and has master the art of putting on my shoes not an easy thing to do, we got talking with mom about me putting on my own shoes on. Continue reading

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kids always say what they want to

For your child when did they come to realize they were perceived as different? For me, I think I first came to know I was different really was when I first entered the mainstream school setting. Don’t get me wrong, Continue reading

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Appointments with dignity

“I was wondering if you could open a discussion on how people in wheelchairs handle going to the dentist if they can’t be transferred to the dental chair? Do some use a reclining wheelchair? or have dentist’s with a large enough room to use a lift??? We need some ideas… thanks”

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Milestones: seeing change blossom before your eyes

For March blog carnival

I am not going to lie; I am not sure what to write for the blog carnival for this month. The topic is milestones and although I feel this is cheesy to do I think in writing that last paragraph I have answered my own question.
I have written a lot on this blog about the social isolation of disability. I began writing this for me and grappled with the idea of keeping my blog private and thus only allowing me to read it. Then a quick Google search changed my mind. Google revealed that there wasn’t much (if any) accounts about living with cerebral palsy from someone that has it themselves. There was numerous parental accounts but even those felt like they didn’t reflect myself nor my story. So after some days I decided that the only way to create change was to be the change I wished to see reflected online.

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