Bridging The Gaps By Sharing Experiences

Yesterday I was to travel an hour away to attend a discussion about where the study that I have been in since 2002 and perhaps earlier, about life with cerebral palsy was to go. A group of us would be meeting with researchers, to see where we think the next study should focus its attention. I don’t think anyone ended the day with a concrete sense of the new direction but a lot of valuable discussion was had by all. I had the flu so I stayed home but joined in from bed by phone.

The barriers
The barriers we face seem to be a problem no matter where one lives and it was nice to know that I am not alone in these issues that I face. I continue to be a subject of research in the hopes that some improvements can be made within my lifetime. When I talk about barriers I don’t just mean physical ones there are those attitudinal ones as well.

I am glad research is being done on adults with cerebral palsy and their unique service needs and the barriers in day-to-day life. I feel that this is a step in the right direction because I feel that the more barriers we can overcome in my lifetime the easier life will be for tomorrow’s kids, youth and adults with cerebral palsy

if you like my content why not help me out by joining my mailing list you will receive a weekly email from me and a free gift just for signing up!.

Netflix Canada Benefits For Me

 
 Netflix Canada Benefits For Me

Image by Berthold Werner via Wikipedia

Hello everyone, sorry I missed Monday’s post, I am okay, we just got Netflix. I know that is no excuse for missing out on writing Monday’s post but since last Friday I have watched something like 20 movies.

 

 

Continue reading

if you like my content why not help me out by joining my mailing list you will receive a weekly email from me and a free gift just for signing up!.

What Is Your Biggest Challenge In Understanding Life With Cerebral Palsy

I will admit, I at the best of times am unsure what you parents and you that, in fact have CP yourself would like to read about here, it is said in any sense of writing project whether there is an ending date or not – is to write what you know, I guess I have taken that advice to heart huh? Continue reading

if you like my content why not help me out by joining my mailing list you will receive a weekly email from me and a free gift just for signing up!.

Please help me solve one of the problems I face in accessing accessible travel

300px Handicapped Accessible sign.svg Please help me solve one of the problems I face in accessing accessible travel
Image via Wikipedia

If you have read my blog for some time you will see my yearning to travel. My roommate and I have looked for a functional means to travel, running into our main problem being as simple as transportation. Allow me to clarify: yes there is accessible travel resources, accessible transit options. I can hear you all saying: “Well, Laura then what’s the problem?” The problem, as I have hinted at before is this, very few companies that I have found, and this is maybe evident of my researching skills; but is it just me or is it hard to come by a vehicle that will carry two wheelchairs? Continue reading

if you like my content why not help me out by joining my mailing list you will receive a weekly email from me and a free gift just for signing up!.

Summer Camp Isn’t Just For The Kids

2921542434 7fab713769 m Summer Camp Isn’t Just For The Kids

Image by easylocum Via Flickr

I am not a parent, but I am the child with the disability. My own experience I would guess rings true for many families who have a child with a disability: you know, where you are on-call for your child 24 hours a day seven days a week 365 days a year, that’s more than anyone’s livelihood and often times there’s no sign of this scheduling allowing a break. Continue reading

if you like my content why not help me out by joining my mailing list you will receive a weekly email from me and a free gift just for signing up!.

what are your hobbies?

5282410554 cdfe450944 m what are your hobbies?

Image by paperbackwriter via Flickr

so as I was looking at my earlier brainstorming sessions for what to write here today I saw this post title and I thought I would ask what are your hobbies and in the beginning did your disability make it a bit of a challenge? (or that of your children?) Continue reading

if you like my content why not help me out by joining my mailing list you will receive a weekly email from me and a free gift just for signing up!.

Adventures with the Nuwave Oven

Today my roommate sarah had the idea to make a pizza in the nuwave oven and suggested that I film it! We both have cerebral palsy This is the first time we’ve used it completely without support -we did it!

Oh and in case you wanted to know the pizza was AWESOME!

 

 

if you like my content why not help me out by joining my mailing list you will receive a weekly email from me and a free gift just for signing up!.