I welcome a child’s curiosity

I think all too often when you live life from the point of view, of a visible disability I think it truly lends itself to being somewhat of a poster child for other folks with disabilities. My perception is that … Continue reading

working to better the disability cause

As an adult with a disability I have been working to better the cause for people with disabilities since 2009 by means of this blog. I think it is an honor to be the voice for others in a similar … Continue reading

have the courage to be different

The reality is that living with a visible physical disability can be hard, and humans are curious. Well-meaning people stare and have been known to gawk and give looks of pity. I know this can be frustrating but when you … Continue reading

Understanding Cerebral Palsy: What Startle Reflex Really Means

.You know when a sudden noise causes an infant to jump out of their skin? That is moro reflex. This, as I understand it is a reflex that is normally lost as children grow, but this is a reflex that … Continue reading

Adjustment Period Required for New Equipment

  Like many, I don’t always enjoy the adjustment period required when you get new equipment. Adjusting to a new piece of equipment is sometimes overlooked.Even with a new wheelchair despite often having a trial period with a chair that … Continue reading

Startle Reflex:the question I have always had

I have wondered if cerebral palsy and the startle reflex is commonly associated with it, does everyone with cerebral palsy have the startle reflex? if you like my content why not help me out by joining my mailing list its … Continue reading

living out my socially awkward teen years with a disability

Having a disability can be a socially isolating thing but I personally found it a struggle in my teen years. Teens are so socially awkward to begin with that I found a few things useful to realize. People are especially … Continue reading

startle reflex Cold Winter Days, Cerebral Palsy and Tight Muscles

I’ve written a lot on the topic of tight muscles, startle reflex, and cerebral palsy. But being that it is winter I thought it was worth revisiting. This winter, I noticed an improvement in these areas for me, and I … Continue reading

independence: creating a sense of it while having help

I am a self proclaimed princess, which meant that for years I lacked an attitude of independence. Disability can change one’s sense of independence. Having a disability and living on my own has taught me to develop a sense of … Continue reading